We’re bad at talking about death. And yet, whether or not it’s conscious, most people have fairly specific wishes for how they want to die.
- Some prefer to die at home surrounded by family members whereas others prefer to die in a hospital to reduce the burden family members might feel
- Some prefer to know that their doctors will fight aggressively to the very end whereas others prefer more emphasis on the quality of their life once they have come to terms with what might be a low chance of recovery
- Some prefer making specific plans around finances or what a memorial service might look like whereas others might be less concerned with specifics than having their values considered when decisions are made
The most important step, though, is to have the conversation because the alternative can be disastrous. When people don’t talk about end of life wishes, patients often get what they don’t want and family members often end up burdened with the worst consequences. A well-intending family member might have no idea whether or not his or her loved one would have wanted to be put on a ventilator, or even worse, know when a ventilator should be turned off. They might feel guilty for the decision they do make; they might regret not having clarified things much earlier; And I’ve seen time and time again that not having these conversations can disrupt a family member’s grieving process, causing unnecessary harm for months or years following the death.
Many people prefer not to talk about death secretly hoping that if they ignore it, it will go away. Others imagine that these conversations can wait. But I’ve learned a simple mantra over and over again from my, sometimes intensely suffering, clients: Don’t wait. Find a way to at least begin talking about the most important conversation most of us never have.
Looking for places to start? I can be a resource, or you may want to start with these fantastic websites: